today marks 1year since I layed on an operating room table, brain exposed as a talented surgical team removed a tumour from my brain approximately the size of my fist.
I still suffer from side effects from that surgery like left side weakness and significant vision loss in my left eye. for a long time I lost my personality and those things that make me, me.
today I’ve regained quite a bit of strength on my left side, my vision will never come back as my optic nerve was nicked in the surgery. But I’m happy to report that I’m just as spunky and cheeky as I was before the surgery, maybe a bit more so.
I also recently (with a great support team) walked a 5km race in one hour and eight minutes!
tomorrow Dawn and I are headed to England!
life is as normal as it ever will be!
a massive thank you to everyone who helped get me to this point, Dawn,Mom,Dad,Grandma and Grandad, Ann,Davidcountless friends for rides and anyone I missed.
I know I’m busy on here today, but this is the best definition of my tumour type I have found on the web.
Anaplastic Astrocytoma (Grade III)
The cells of these tumours are moderately fast growing and less well defined than an astrocytoma (Grade I or II). These higher-grade tumours are malignant and treatment is usually more aggressive than that for lower grade tumours. Patients are often diagnosed in adulthood, with diagnoses peaking in their forties. These tumours are diffuse and infiltrating to the surrounding tissue, and the tentacle-like projections of these astrocytomas make them harder to remove. Treatment involves removal of as much tumour as safely possible plus radiation and chemotherapy. – See more at: http://www.braintumour.ca/1315/brain-tumour-types/?utm_source=Google%2BGrant&utm_medium=General%2BAwareness&utm_campaign=General%2BAwareness&gclid=CM-wt7607r8CFYZaMgod8zsAjg#sthash.VRBehsIp.dpuf
mom and I are at the hospital for a regular drs appt, and as I look back…wow!
I have come a long way. I used to ride like a princess in a wheelchair from the car to the drs office, now I easily walk the distance and back!
I can use my left hand and arm for tasks I didn’t think possible laying in my hospital bed after the surgery.
I have also regained some of my “spunk” as mom will attest to. she’s called me a Brat several times already in our few hours together today.
life is definitely getting better in Keryland!
Happy Birthday Papa and Uncle Al!!!
Today we got Kery’s latest MRI results and once again we are very grateful that there are no new lesions, no sign of disease progression and the surgical cavity is decreasing in size. This is definitely the best news we could hope for.
Unfortunately her next found of chemo has to be delayed because she needs to have a root canal and she can’t do chemo until there is no worry about infection.
The nurses at the TBCC were very impressed with Kery’s progress and encouraged her to continue with her exercises as this will really help with her healing and of course with her overall health. Kery, Dawn and a few friends have registered to do a 5 km walk on August 9th and everyone is super excited about this.
Thanks again to you all for your continued caring and support. It means the world to Kery, Dawn, Gary and myself.
Dawn and I are home from another great weekend at the trailer I made my first post-surgery fire Friday night and it was a good one.
I’m not allowed to use an axe anymore, so I use this foot operated wood splitter to make kindling.
last week I had an MRI and we’re hoping to get the results this week. it WILL BE MY 3rd clear one in a row!
today marks the end of round 7 of chemo, and it’s gone pretty good so far!
Yesterday, Mom and I saw my neuro surgeon and he was “delighted” with the progress in my left side. I like my neuro , so it’s encouragement to keep working hard to keep delighting him. all three of us left the room smiling!
when I was 3, I asked my paternal grandma how old she was. for some reason, she replied “82!”and she has been ever since tomorrow is her actual 82nd birthday, and the family came together today to celebrate.
with over 15 people celebrating, it was loud and overwhelming for me. I left in tears. It wasn’t my party, but I cried cause I needed to!
these things remind me that though I’ve come a long way, I’m still healing and have a long way to go
Mom and I got my MRI results today and they are good!
no new cancer spots (lesions)
no signs ofdisease progression and
the cavity where they removed the tumour continues to Shrink!
we are happy with this news!
Thank you all for your continued support, thoughts and prayers. they really do help me get through.
I’ve started filming me doing my rehab exercises so I can see my progress. then I decided to put them on YouTube to share with all of you. here is the first video:
I had an MRI this past Wednesday and we hope to get the results when we see the oncologist next week.
I have started playing Catch with myself to work on my left hand/arm and hand/eye coordination.
Dawn took some video of me to share with all of you