Monday I had routine follow-up with my neuro surgeon. as we looked at my most recent MRI, I asked how big my tumour was “BIG” was the response. when I pushed a bit, he told us fist sized!
wow! and yes, there are still some brains left!’
Round 3 started on a good note but ended rough.
today is my 1sy day between rounds to get stronger and tackle round 4 Head-on!
I start round three of chemo tonight. round 2 was better than round 1, and round 3 is going to be better than round 2!
With flying colours!
Saturdaythe Besties came for a long overdue visit. it was great to see them!
Sundaywe went to Mom and Dads for brunch. dad and Dawn headed out to the Archery range, but had little luck. one place was closed and the other was too busy. another time perhaps. Mom and I stayed behind to watch Olympics.
Mondayhad Dawn and I on the highway, taking the new car out for a run. we also went to the Royal Tyrrell Museum. a museum dedicated to palentology. it was crazy busy, so we left and had lunch at Horseshoe Canyon.
another great day!
What an exciting day! We learned today that Kery’s first post-radiation MRI has come back clean, no lesions and no signs of any progression of the disease. This is the best possible news and we are all so very thankful that the results are so great.
Round 1 of chemo was very difficult for Kery for a number of reasons including catching a cold and having an infection in her scar. Round 2 starts tomorrow and with the very excellent help and advice from the staff at the Tom Baker we are anticipating that round 2 will go much better and will be easier than round 1. We are so very grateful for all the support from so many at the Tom Baker, from the doctors, nurses, dietician, psychologists, etc., not only for Kery but for Dawn, Gary and myself as well.
Kery has had a terrific last few days, from visiting the zoo, going to the Hitmen’s hockey game, having an outing with her grandparents to seeing a movie. She and Dawn are making plans for the summer and are looking forward to visiting England and spending time in Sundre.
I know it’s been a long time since I’ve posted, and I’m sorry. The truth is, I’ve been going in and out of depression-made worse by the steroids. the further away I get from being on them, the better it gets. I have so much to still be thankful for, but I’ve lost so much with the loss of my vision and the weakness in my left side.
things that help me are spending time with family. my grandparents had us around for dinner last night, and the night and meal were what the doctor ordered! thanks for everything, and the new sweater Grandma!
I’ve also had issues with a painful back/shoulder, them a cold.
I made it through my first round of chemo relatively unscathed. we’ll know more about how I tolerate the drug when I do round 2 toward the end of the month
HAPPY NEW YEAR!!!
Gary and I would once again like to say thank you to everyone for your love and support for Kery and Dawn over the past few months. Your words of encouragement and concern have made a tough situation a whole lot easier to deal with. And your caring has made a world of difference to Gary and me as well. I know that 2014 will hold some challenges but Kery will come through with flying colours knowing that she has your continued love and support.
Thank you all and we wish the very best to all of you and your families for 2014.
On Friday, December 6th, Kery received a call from Dr. Singh at the Tom Baker Cancer Centre. He is the doctor she would have had for chemo had she been accepted into the study. He wanted her to come in, said he had some new data to share. So today Kery, Dawn and I went to see Dr. Easau (don’t think this is the correct spelling) who is the head of the chemo department. Originally we were told that without the study Kery would not be eligible for any form of chemo. But today they offered her a year of chemo, 5 days a month, every 4 weeks. This is the best option from the study, same chemo drug as she would have received had she been accepted into the study. When we asked what had changed we were told that there is no data to support giving Kery chemo but as she is so young and healthy they were willing to treat her agressively. One of the nurses told us that Dr. Singh went to bat for Kery and pushed for chemo for her. We are very grateful for the wonderful and compassionate treatment Kery has received every step of the way. Today was not one of Kery’s better days, her bad shoulder was acting up and she was in a lot of pain. When I met her and Dawn at the hospital Kery burst into tears. A young orderly came to see her and offered to get her a drink, a place to lay down and a box of kleenex. He also went off to find out if the doctor could give her something for her pain. When we saw Dr. Easau he was concerned about her pain, at one point laughing about an oncologist treating a sore shoulder, but he made sure she had a warm blanket for the shoulder and also prescribed some medication for the pain. Anyway, Kery will be starting chemo on the 26th or 27th of this month. Even though it is in pill form and can be taken at home it is full-on chemo with all the same side effects. Needless to say we are thrilled at this turn of events and hope Kery will sail through chemo with “flying colours”!
We also welcomed Ann (Dawn’s mum) to Calgary today, she has come from England to celebrate Christmas with us.