Spring Sprint

Hi family, friends, and friends of family and friends! The Brain Tumour Foundation of Canada is operating an awareness/fundraising event in Calgary called the Spring Sprint. It is a 2.5 or 5km walk. For obvious reasons, I will be participating this year.

I Have started a team called With Flying Colours, and you can register to walk with me. My team’s fundraising goal is a lofty $5,000. Please help if you can!

The team page for With Flying Colours is:

http://www.springsprint.ca/site/TR?team_id=2371&fr_id=1203&pg=team#.VQNgXdGCOrU

MRI results

It just occurred to me that I’ve been a bit slow in updating my blog.

Last week, Feb 9th and 12th, Mom, Dawn and I got my latest MRI results and they’re good!

No new growth showed up and both my neuro surgeon and oncologist are happy with what they saw.

They are both also very pleased with the improvement in my strength.

I’m not ready to return to work yet, but I am making great progress!

Sorry for the late post!

Quick update

I recently picked up a slide board. it’s a training tool that will help with my skating. It will hopefully allow me to come back stronger than ever!

Things are going really well for me. I’m regaining strength and abilities every day!

I had my first post-treatment MRI last night, Feb 2nd, and should get the results next week!

Bye for now!

Wrapping up 2014

A small group gathered at my request on New Years day for what was supposed to be a celebration of the end of my treatment. I instead turned it to be about everyone else. To Thank those that were there for me and their part in my journey. I did a small speech, and here it is. I didn’t have a microphone, so you’ll have to turn up the volume.

I missed some important people in this speech, and they are my English family, the Denningbergs and the Haywards

To Travis, thank you for being an amazing sounding board when I felt the most alone.

And to the Chorneys, you are one of the best things to come out of this experience!

As we are now in 2015, I am leaving the events of the last 17 months behind, and am very much looking forward to seeing what great things the universe has in store for me.

Thank you all for following along with my journey.

Happy

When I think back to this time last year, I was miserable. I think that might be an understatement. This year, I’m a different me. I’m happy! rejoicing in the Christmas spirit, dancing and singing along to Christmas music, and especially enjoying being around my families and loved ones.

I’m enjoying the little things in life, and especially loving being happy!

my first post treatment MRI is February 2nd, and we’re expecting the good news trend to continue!

Reflecting on the past year

This time last year, I was really struggling. I had just started Chemo, and it was rough. I couldn’t find my Christmas spirit, and I was miserable.

Now, I am happy, in the full Christmas spirit and ready to celebrate to the best of my ability.

everything I wanted last year, I have now, and none of it is material! we’ll mostly lol

I find myself in awe of my own strength. if you had asked me in my first couple rounds of chemotherapy if I would’ve made it to round 12, or if I’d be able to use my left arm again or even skate again, the answer would have been a more colourful version of “Heck No!” but I finished all 12 rounds of chemo, I can scratch the top of my head with my left hand and I’ve been skating.

if I can share my most powerful lesson from this experience:

even if the obstacle you’re facing looks as daunting as Mt. Everest, Believe in yourself. You CAN do it! The top of the mountain may always seem just out of your reach, but keep trying because, you CAN get to the summit!

Treatment Over

it’s been a long and bumpy road, but we’re at the end!

After a 10 hour surgery, 33radiation treatments and 12 chemotherapy treatments, we are finally done! and I say we, because my recovery truly has been a team effort with a lot of people involved, but none moreso than Dawn, Mom and Dad. it really was a team effort with the 4 of us making treatment decisions together since my diagnosis on August 12, 2013

Just so you all know, the tumour may come back in the future. if it does, I’ll kick it in the butt like I did this time!

Now I go into monitoring mode, where I have an MRI every 3 months.

thank you so much for sharing in this journey with me!

MRI Results

well, my MRI results are good. Everything is as expected and there are no areas of concern.

my headaches are likely caused by the nerves in my brain continuing to repair.

I am starting my last round of chemo either tonight or tomorrow. I’m just waiting for the results of my bloodwork.

I now move into the monitoring phase where I have an MRI and review every three months.

we couldn’t be happier with how things went! An early Christmas present for us all!

I’m so lucky & fundraising

I have said it over and over again, I’m so lucky to be treated at the Tom Baker Cancer Centre. Amazing Doctors, bleeding edge research. it’s just such a blessing.

I came across this talk my Oncologist, Dr. Jacob Easaw gave, it’s long, but worth a watch/listen. many aspects of it hit home.
youtube video

if it weren’t for the care of dr easaw, I wouldn’t have gotten Chemo to begin with, and when things got rough, dr easaw really encouraged me to stay the course. without him I would’ve quit chemo and, I wouldn’t be staring down round 12, my last round!

I’m doing another fundraiser for the Tom Baker Cancer Centre, this time a bake sale. I will bake to order Rice Krispie treats, sugar cookies, chocolate chip cookies (regular or minty), peanut butter cookies or dog cookies, all by the dozen for a donation of your choosing.

the only catch is you have to pick them up because I can’t drive.
email me at Kery.long@gmail.com to place your order.