It amazes me how much love and support has come our way since learning of Kery’s Teddy the Tumour. There has been a lot to absorb and I’m sure we will have a lot more as we go along.
Our beautiful daughter has already been an inspiration, handling this news with humour and an attitude of lets get on with it and do what we need to do. The humour started in the neurosurgeon’s office when we were looking at the MRI. The first thing out of Kery’s mouth was “Yahoo, there really is a brain in there.” I think the doctor appreciated the humor mixed in with the more serious discussion.
We have also decided that there will be no more tears, maybe our eyes will leak but no more crying!
There is so much that I want to say, there are so many thoughts rambling through my mind but I’m not sure at this point that I can express them properly. So for now let me say how proud we are of our wondereful daughter, how thankful we are for the support of our family, our friends and most of all Kery’s friends. And I must also express our love and heartfelt thanks to Dawn, we are so glad that you are part of our family.
When I visited with the neurosurgeon on Monday, he told me that what we thought were migraines are actually small seizures. They are called focal seizures, so I don’t have what most people would acknowledge as seizures. In fact – no one usually knows when I have one. Because they have now been diagnosed as seizures, I am on anti-seizure medication and it’s making me feel pretty nauseous. The first time I took the pill yesterday, I felt drunk! Like not when you get sloppy drunk, but that stage when you’re really tipsy and have to make the decision about not having that next drink and sobering up a bit, or having that next drink and crossing the line into drunk. Well, it felt like I had just crossed that line into drunkenness.
The biggest impact on daily life so far is that I’m just tired all the time – like could really fall asleep sitting in my chair tired. And, (I think) because of the medication, I feel nauseous all the time, and have lost some appetite.
I have made the decision to shave my head. Mostly because I have to shave a giant question mark shape in my head for the surgery, so I’m going to go whole hog with it and get rid of it all. I am going to donate my hair, and just need to figure that part out.
At the urging of some really supportive co-workers, I’m going to do a fundraiser for the Canadian Brain Tumour Foundation along with the shaving of my head. More details on that soon.
I’ve decided to bring some guest bloggers onboard.
Beth – Beth is my Mom and will be posting sometimes about her own feelings and keeping you updated on my post-surgery recovery until I feel up to posting again.
Gary – Gary is my Dad, and probably won’t post, but he can if he wants to.
Dawn – Dawn is my girlfriend and will be like my Mom, posting about her own thoughts and feelings and about my status/recovery.
Sam – Sam is going to help me with the fundraising part of things and may be posting about that.
I got my surgery date this morning, and it’s August 27th! I’m happy that this is moving along, and that we can get this thing (we’re calling it Teddy) gone as soon as possible!
I don’t know what time the surgery is, and I won’t know until the day before.
On the 21st of August, I have an appointment with a pre-operative nurse to go through what to expect from the surgery.
I feel really good about moving this forward as soon as possible, as does the rest of my family. We are all really overwhelmed at the response and support we are receiving from everyone and thank you so much for your thoughts, prayers and wishes!
I can’t even begin to tell you just how overwhelmed my family and I are by the amazing outpouring of support. It has been truly amazing, and will go a LONG way in helping us get through all of this!
I found out that some of you have left comments, but they weren’t showing up. My spam blocker is in overdrive at the moment, and has been keeping all of your blog comments for me to approve. Please leave me comments on the blog, and be sure I will see them and make sure they are approved.
LOTS of love to you all, and thank you so much for your prayers, wishes upon stars and overall positive energy
Anyone who has known me for awhile knows that I have had a few health struggles – none of them major. I am going through another one right now, so I am using this latest scare as motivation to get my health in order, at least as much as I can directly control, once and for all.
I’ll be using this blog as a journal of sorts to chart my journey as I make one final attempt to get healthy.